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PMR Dosages and Managing Symptoms
Polymyalgia Rheumatica (PMR) | Last Active: Jul 27 8:00am | Replies (468)Comment receiving replies
Thanks. Sounds like this is new for you too. Isn't this just unbelievable? I never knew this disease existed before. Anyway, yes you need to see Rheumatologist to get the proper blood tests and be put on the Prednisone treatment plan where they monitor your blood test levels and determine the dosage requirement month by month, is my understanding. Good luck. Waiting til May is long.
Replies to "Thanks. Sounds like this is new for you too. Isn't this just unbelievable? I never knew..."
My Rheumatologist sucks and I've only been able to see her once since May 2022 and one 10 min phone appt. I get more helpful information on this Site than any doctor has provided thus far. I do get monthly bloodwork, but never find out the result of it - good or bad. I have to make an appointment with my GP in order to discuss any outcomes. At 14.0 mg. at this time. Would love to taper down a bit, but this is not the time for that. Too many flu bugs floating around. Negative Nancy today. Sorry, have a stomach bug. Nothing seems to be the "24 hour" variety anymore. Wish I could be more uplifting. Cheers to you!
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Yes. I'm pushing because up here we have to. The neurologist is very thorough though. I knew not of PMR ever. Mine actually started suddenly mid-August and I never was diagnosed until beginning of Jan./22. A long time to be in agony and not knowing what was causing it eh, but my family doc was just not listening and has since retired; last going off he finally referred me on an emergent basis to the neurologist (after Christmas). Ugh. The CRP levels were alarmingly high, but normal now.