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Feeling discouraged and too many specialists

Neuroendocrine Tumors (NETs) | Last Active: Jun 30, 2023 | Replies (30)
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@phoebeghostwriter

Awe, thanks for the follow up. 🙂 I have a serotonin and chromein G test in progress to see if I’m led in that direction or if it’s Cushing. Once the results come in this weekend I’ll have maybe better direction. With my symptoms all over the place, no one knows what to do with me- high cortisol, low cortisol, RA, weak thin legs, etc. Mayo isn’t scheduled until March.

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Replies to "Awe, thanks for the follow up. :) I have a serotonin and chromein G test in..."
cvb | @cvb | Jan 21, 2022

Mt. Sinai team in NYC with Dr Willin does telehealth after sending all records and cd to them they respond quickly. I have watched their education sessions and complex cases. this is the NET team in Mount Sinai NYC just athought good luck

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Pattyd | @patdame | Jan 22, 2022

Call Mayo daily and also ask to be put on cancellation list. We have been with Mayo since 2002 and have done this many times and quite often our appts get moved up. They don’t mind you calling daily at all. I hope you get seen sooner and that they can give you some answers.

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