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Feeling discouraged and too many specialists
Neuroendocrine Tumors (NETs) | Last Active: Jun 30, 2023 | Replies (30)Comment receiving replies
Hello @phoebeghostwriter
I am sorry to hear that you are still searching for answers. If you need to find a NET specialist, here is a link from the Carcinoid Cancer Foundation that lists NET specialists all over the U.S, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/. You might see if you can find one that is near to you and then ask for a referral from your PCP if a referral is necessary for your insurance coverage. A GI doctor might also be able to help you at this point.
You said you were waiting for an appointment at Mayo. Has one been scheduled yet?
Replies to "Hello @phoebeghostwriter I am sorry to hear that you are still searching for answers. If you..."
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Awe, thanks for the follow up. 🙂 I have a serotonin and chromein G test in progress to see if I’m led in that direction or if it’s Cushing. Once the results come in this weekend I’ll have maybe better direction. With my symptoms all over the place, no one knows what to do with me- high cortisol, low cortisol, RA, weak thin legs, etc. Mayo isn’t scheduled until March.