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Career Prospects for People with Neuropathy

Neuropathy | Last Active: Sep 20, 2022 | Replies (21)

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@johnbishop

Hi Steve @stevemann, Welcome to Connect. I think it's great that you are searching for help and support for your neuropathy in your feet. The more we learn, the better we can advocate for our health. Two of the best sites for learning more about neuropathy that I use regularly are:
-- Neuropathy Common: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

You might also find the following discussions helpful:
-- Neuropathy 101 - Knowledge is power?: https://connect.mayoclinic.org/discussion/neuropathy-101-knowledge-is-power/
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Do you mind sharing a little more about your neuropathy symptoms and what bothers you the most?

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Replies to "Hi Steve @stevemann, Welcome to Connect. I think it's great that you are searching for help..."

Hi John,
Best I can remember it started back in 2012 with a diagnosis of Idiopathic poly neuropathy just in my toes on one foot then both. Now it’s small fiber neuropathy. Some days are ok and some days are just horrible. I’ve been on gabapentin (2700mg/day) and it seems to ward off the localized pain but does nothing for pins and needles. It is progressing into my leg muscles constantly aching and nocturnal cramping which bothers me the most (affects sleep).
I’m hoping to learn from others who have this disease how they deal and thing they cope with it. I’ve given up on doctors telling me there is nothing else to be done.
SM

Hi John, after my first knee replacement my legs became unequal in length. I was told it was because I needed the other knee replaced. So I did. Somewhere from the first surgery I developed a numbness in my feet which have gone to both legs up to and including my knees.
I have tried acupuncture, PT, and etc. Nothing has helped so far. Someone suggested low dose of LDN.
What r ur thoughts.
Fran Casale