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The Wages of a missed Neb session.
MAC & Bronchiectasis | Last Active: Feb 3, 2022 | Replies (66)Comment receiving replies
Well, I guess like all other practices related to MAC and Bronchiectasis, it depends...for a year I nebbed 7% saline twice a day after I quit antibiotics but still had a positive culture. When having issues with asthma and allergies I switched from levalbuterol inhaler to neb, then back when better.
Over a year ago, I changed to: once a day saline nebs, daily flovent inhaler, levalbuterol only as needed, added1200 mg daily Nacetyl-cysteine and 1200 mg daily Ulimate Omega, saline neb daily (once) . If allergies or asthma kick up, I add levalbuterol as needed and increase saline neb. I have also taken Mucinex and Singulair daily for many years.
In 14 months I have had one exacerbation that required short courses of steroids and antibiotics.
In December 2021 my followup CT showed no change for 2 years, neither did my O2 seats or spirometry. My airway clearance is Aerobika or just huff coughing depending on how much crud I have and how I feel. My docs are happy with my health.
This works for me, but may not be nearly enough for someone else. Each of us needs to do enough to stay healthy, while still living our best life.
Do you find you feel better with more frequent with neb?
Sue
Replies to "Well, I guess like all other practices related to MAC and Bronchiectasis, it depends...for a year..."
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Hi Sue! Thanks for all that info. Since joining this forum I always read what you have to say as it carries as much weight with me as my own physician's advice. Since beginning the nebulizing I was always told to do it twice daily. My nebulizer was advanced to the volara machine, a percussion vest was added and I began using 7% saline after joining this forum. I initially had a dry cough and now it is much more "wet". In two years my CT's have been stable and my pulmonary function tests have improved so I think the regime is working. I try to faithfully do twice daily but can't always do that and try to get in at least one treatment a day. I also use a travel nebulizer when on the road, which is usually once a day, So for the most part I do twice daily and feel this will carry me for those times I only do once daily or am on the road with the travel nebulizer. I do not travel with the vest, just nebulize. So I think this regime is helping me to hold my own. I always read the frequency of what others do and now feel that when I do have to miss that it is maybe not such a terrible thing. I did develop a rotator cuff tear and am heading for surgery for that. Will not be able to use the vest for awhile so maybe will add Mucinex during that time. I hear it is a rough surgery so will see. Thanks for all your advice on the forum.
Gail