Hi Theresa, My dietary journey with this disease has been long and troublesome, so I will try to make this answer as short as possible. Initially, I was being treated for GERD, gastritis etc. so I changed my eating habits....no late night eating, no spicy feeds, no wine, no fizzzy drinks,
no overeating and just avoiding anything that seemed to aggravate my condition.
These actions were helpful at first, but not for the long term. It became evident to me that it didn't matter what I ate. I had episodic stomach distress and diarrhea. I lost 10 lbs in 3 mos.
Since my diagnosis, I now know that the tumors were secreting lots of serotonin that was adversely affecting my digestive processes.
The Octreotide injections have helped tremendously with this problem. I tolerate most foods, but
still have to be cautious. I avoid acidic fruits, (especially grapes), tomatoes in any form, most nuts,
junk foods, highly sweetened foods (frosted cakes,cookies, frozen yogurt etc). I limit red meat, eating mostly chicken, turkey, fish). I've had to give up my all time favorite snack...popcorn. What a downer! I do my best to "stick to the plan" , but it isn't easy. However, I feel so much better when I do. So that's it in a nutshell. Hope it helps someone else.
Lenora

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