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johnsoncs1 (@johnsoncs1)

Anyone diagnosed with Phyllodes tumor?

Cancer | Last Active: Dec 17, 2022 | Replies (43)

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@sarapusc

I had a lumpectomy 1/14/2022, turns out to be phyllodes tumor, they say it is benign but now of all I'm reading I'm a bit scared, were they too quick to say benign? The surgeon is going to discuss with the oncologist and radiologist to see if they want to do anything further, so far they did a lumpectomy with more than 1cm of healthy tissue also removed. I realize this is rare and am trying to not jump to any conclusions, if it's benign, it's benign, right?

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Replies to "I had a lumpectomy 1/14/2022, turns out to be phyllodes tumor, they say it is benign..."

Hi Sara, it sounds like they were able to remove the non-cancerous tumour with a clear margin. That’s good. Phyllodes tumors aren’t usually cancerous. But whether cancerous or not, your doctor will likely work out a follow-up schedule with you to monitor to check for possible regrowth.

Did your doctor talk to you about follow up with regular breast exams, mammograms, ultrasounds, and possibly MRIs?