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DiscussionGrand Mal Seizures: Anyone found out what's causing your seizures?
Epilepsy & Seizures | Last Active: Jan 21, 2022 | Replies (21)Comment receiving replies
Replies to "@santosha - I wish I could say he is seizure free. It is controlled with Kepra..."
Hi @nin
I am sorry for my misunderstanding. I believe Jake also understood that your son is seizure-free.
Receiving an accurate diagnosis of what kind of epilepsy and seizures one has is for sure important to get adequate treatment and to improve life quality. But knowing what has caused epilepsy, did not add value in my case.
Just sharing, I have temporal lobe epilepsy on the left side of the brain with sclerosis on my hippocampus. My seizures are mostly focal. This diagnosis has been very important for getting adequate treatment and the understanding of my refractory epilepsy (medically resistant epilepsy). But knowing that the accident I had when I was 5 years old did most probably cause epilepsy, did not change my treatment and/or add value.
Please do not get frustrated!!! Do you know exactly what type of epilepsy your son has? Does he know what kind of seizures he has? This kind of diagnosis is for sure important.
I also did sometimes forget to take my medications at first, as there were so many to take. I have then put an alarm on my mobile and since then I rarely forget to take my medications. Have your son tried using an alarm for taking his medication?
Stress, anxiety, and bad or little sleep are my triggers to my seizures. Based on that, I have made changes in my life, paying always attention to getting enough rest.
That we never lack faith! Wishing you and your son all the best. If I can be of further help, please let me know. It will be a pleasure.
Santosha