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Grand Mal Seizures: Anyone found out what's causing your seizures?
Epilepsy & Seizures | Last Active: Jan 21, 2022 | Replies (21)Comment receiving replies
@nin
I have never seen a Neurologist at or been in the Mayo clinic Comprehensive Epilepsy Center but was in one at Stanford University and one in San Francisco.
I believe your best chance for diagnosing the cause of your sons epilepsy would be at a Comprehensive Epilepsy Center where he would be under the care of an epileptologist. Normally Epilepsy Centers see patients with intractable Epilepsy. However, since his Epilepsy isn't active I wonder if they would accept him as a patient.
Benefits of an Epilepsy Center is they work as a team with various specialists and will decrease or stop his medication so he'll have a seizure which will be captured with video EEG to hopefully locate where the seizures originate. They have the latest imaging technology, surgical techniques and Neurostimulation devices.
Since your son's seizures are no longer active why is it important to find the cause?
Mayo Clinic contact information:
https://www.mayoclinic.org/about-mayo-clinic/contactList of Comprehensive Epilepsy
Centers throughout the U.S.
Take care,
Jake
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@jakedduck1 - Thank you for the info, it's greatly appreciated. My son is not completely seizure free, it is controlled with Kepra. He has been known to have a seizure on occasion if he forgets to take a dose and if he doesn't get enough rest. He stays busy taking care of his 2 year old and his job. I am afraid that he is not getting enough rest and it is easy for him to forget his dose especially while at work as he stays busy. When I read this in the Mayo Clinic webpage, I want this for him. "The goals of treatment include: No seizures, no side effects and no lifestyle limitations", my thought was I definitely want him to have all the above. He drives to work and I worry about this every day. He lives in AZ and I'm in TX, for these reasons, I want them to find the cause, if they can make him seizure free.