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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Hi Heather @heathert, I've finally received the Arikayce and Lamira inhaler system. They just told me to go and look at a video when I get home and gave me the internet address -- https://www.arikayce.com/taking-arikayce-video/ . Well I'm totally freaked out by this site. (I've already been on the Big 3 for two and a half years. That was quite stressful enough right at the beginning, thanks. But this is a whole new deal).
The problem is I am alone. I don't have a partner or family or anyone living with me if anything goes wrong. The things they headline you really need to have someone around for -- immediately. So i am stuck at the moment, and don't know what to do. I can't start using it yet! Can you help me? Can anyone help?
Replies to "Hi Heather @heathert, I've finally received the Arikayce and Lamira inhaler system. They just told me..."
@anniepie, I never had problems with Arikayce and I am not on Lamira. Maby ask your specialist about it, to see if he thinks it is necessary to have someone around or maby you could have your first dose at your Dr s office and stay for a few hours, otherwise ask a friend to stay the night. It is great stuff and worth it. Let me know how you get on. All the best Heather
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@anniepie Oh my goodness! You need a whole lot more than being told to watch a video. Call Panther pharmacy and see if they can send you an online nurse to walk you through it! If not I will send you my number privately and walk you through it myself. So sorry! I was a wreck even with the nurse. It took me two hours of an online tutorial with a nurse. She was sooo patient. @irene5