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MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "Hi Kathy @kathyhg, I was wondering about the SPERO trial too. Here's a link to where..."
@anniepie I have signed up, there was some odd answers to questions, maby they want Latino or Hispanic people, oh well hopefully they will keep in touch. Nice to know these trials are being done. Take care Heather
Your comment "Clinical trials like this seem to take a very long time, compared to all the money thrown at Covid vaccines" is SO true of most medical research!
Remember, however, that what you see and hear on Connect is a very tiny group compared to the hundreds of millions of lives impacted by the pandemic.
Here is some food for thought -
1) NTM is not not well-known, not contagious, and usually not fatal, so there is little urgency. Who among us even heard of it before our own diagnosis?
2) Medical research is very expensive, so the research dollars go where there is the best opportunity for recovery via new therapies - ie conditions that affect millions, not thousands. Unlike the Covid-19 vaccine, most research projects are measured in years, if not decades. That is how long it takes to set up a study, recruit participants, try therapies, produce results, have them peer-reviewed and publish.
3) "The squeaky wheel..." Maybe we need to begin to squeak.
By way of example, before my niece was pulled from her project to do Covid research at the University of Minnesota, she was working on a study of early interventions for stroke that is a 10-year project - and MANY more people suffer strokes each year than have NTM.
Sue