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Neuroendocrine Tumors (NETs) | Last Active: Nov 29 1:22pm | Replies (429)

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@hopeful33250

One day at a time, is the best thing any of us can do, @lenorahaston!
What diet limitations do you have right now? Any foods in particular that give you problems?

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Replies to "One day at a time, is the best thing any of us can do, @lenorahaston! What..."

Hi Theresa, My dietary journey with this disease has been long and troublesome, so I will try to make this answer as short as possible. Initially, I was being treated for GERD, gastritis etc. so I changed my eating habits....no late night eating, no spicy feeds, no wine, no fizzzy drinks,
no overeating and just avoiding anything that seemed to aggravate my condition.
These actions were helpful at first, but not for the long term. It became evident to me that it didn't matter what I ate. I had episodic stomach distress and diarrhea. I lost 10 lbs in 3 mos.
Since my diagnosis, I now know that the tumors were secreting lots of serotonin that was adversely affecting my digestive processes.
The Octreotide injections have helped tremendously with this problem. I tolerate most foods, but
still have to be cautious. I avoid acidic fruits, (especially grapes), tomatoes in any form, most nuts,
junk foods, highly sweetened foods (frosted cakes,cookies, frozen yogurt etc). I limit red meat, eating mostly chicken, turkey, fish). I've had to give up my all time favorite snack...popcorn. What a downer! I do my best to "stick to the plan" , but it isn't easy. However, I feel so much better when I do. So that's it in a nutshell. Hope it helps someone else.
Lenora

my primary diet limitation is sugar as it feeds cancer. Also as I have had UC since 2018 I avoid nuts and anything corse it has been in remission for two years. My food based on immune boosring foods like puple potatoes dark meat chicken salmom olive oil peaches nectarines oranges bloeberries I have a smoothie every day with siggi iclandic skyr naturally 90% lactose free soy milk all the foods accorrding to studies that boos immune system so the body naturally fights cancer. have lost 32 lbs on purpose everything working well.again I do not have screting kind so my diet may not work for others. thank you Carol