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Neuroendocrine Tumors (NETs) | Last Active: Nov 29 1:22pm | Replies (429)

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@cvb

TY I go to mayo in Jax and have been to the support group via our other email address. Dex wash for persons on afinitor to prevent mouthsores a common complaint and some people have real problems with it and will stop taking afinitor in my case mouth sores were not an issue and I found Dr. Mary Hogan about d/c dex after 8 weeks if no sores dr starr agreed with this. so thought would spread the word one less med. My next scan is March 15. I also exercize meditate and changed my eating habits after my sister in law a dr of pharmacology sent me a book Eat to beat disease by Dr Li which is great. Also in counseling for recent loss of family as well. Also go to accupuncture have a great person very supportive. thank you Carol

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Replies to "TY I go to mayo in Jax and have been to the support group via our..."

@cvb

You have some wonderful supports in place! Exercise, meditation, a healthy eating plan, and a good medical team. The counseling you are doing is also a wonderful support for you.

Will you keep in touch and let me know of your progress as you continue on this journey?