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New to Cytoxan (cyclophosphamide)—advice and help appreciated
Autoimmune Diseases | Last Active: Jan 18, 2022 | Replies (24)Comment receiving replies
@mermaid7272 i know that your MRI is tomorrow. You are going to do just fine, i have complete faith in you! You’ve come a long way with this encephalopathy and you need some answers. Do your best to relax.
We’re all holding hands with you as you go through the MRI. I’ll send lots of good vibes! Becky
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No MRI, Becky, it is to be an IVIG at an Infusion center. But due to an complete mess up by the insurance center who was to have given permission, the procedure has been put off till everything is straightened out.
I went to my Neurologist's today, she said that hopefully this will never happen again--- the insurance center had a meltdown of their website and could not process any requests. I am petrified that I will go into a brain meltdown
before getting my infusion.
I really appreciate you support and thoughts, as few can understand this rare disease. Even the doc is mystified by it. Your messages mean a lot!