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@coco1970

Hi, Connie-

I am so glad I came across your post. You sound like you are in the same situation as I. I was diagnosed in October 2020. One of the most terrifying symptoms I am having is my throat closing/swelling. When it is at its worst I I feel like I have to sleep with my head in just the right position or I am not going to get air through my upper throat. I have had about 15 good days since I was diagnosed and this was about 3 days into a 10 day course of Augmentin through about 4 or 5 days after I took my last dose. I have just been given another prescription of Augmentin by my GP but I feel like it was against his better judgement and I am terrified of the side effects that he says it may cause but the terror that I am feeling without taking it is worse. I have had 3 trips to the ER since October and I have trouble having them listen to me when I say it is my throat and not my lungs that is causing the panic. I went to an ENT and he did a laryngoscopy and said that reflux had damaged and irritated my voice box. I have had an endoscopy, a 24 hour pH-Impedance test off of my acid reducer for one week and an esophageal manometry test. Minimal/Normal results and they told me I didn't need to take my acid reducer anymore. I still have bacteria growing in a lab somewhere. The worst part of all of this is that inhalers, nebulizing and my Aerobika device make my throat situation even worse so I have only been able to do deep breathing and huff coughing for airway clearance. I also feel like I have other strange symptoms when I start to spiral like my legs feeling heavy and numbness in my toes and fingers and also my fingers being weaker. Sometimes I can hardly get the top off of a bottle of water. I will keep you posted on any developments that might be helpful to your throat situation that I find on my journey. I am so sorry you are feeling badly. This is all terrifying.

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Replies to "Hi, Connie- I am so glad I came across your post. You sound like you are..."

Hello Echo R, and I am sorry to have to meet a nice person such as yourself, on a site such as this! This site is the greatest, but having to be on it usually means just one thing...we are sick and need help. When it comes to antibiotics, each doctor prescribes something different. Within the last year, I have been on Augmentin, Doxycycline, Cefuroxime, Bactrim, keflex and hospitalized twice in the last 6 months. Each time I was hospitalized, they could find no reason to give (yet another antibiotic) antibiotics, yet they hooked me up to IV antibiotics. Within a few hours, the antibiotics would begin taking effect, and I would begin feeling wonderfully normal. Yet, after discharge, it takes only a few days and the symptoms return. I am a person that did not need to go to a doctor for decades. The thing about this illness is trying to figure out the cause, so we are all doing detective work to collaborate later. I appreciate you keeping in touch with any pertinent information. I am happy to know you Echo R, and hope you feel better. If interested, here is a rundown of me:
https://connect.mayoclinic.org/discussion/throat-radiation-after-effects-aspiration-suffocating-mucous/
Thanks! : )