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Welcome to the NETs Group! Come say hi.

Neuroendocrine Tumors (NETs) | Last Active: Apr 17 5:51pm | Replies (384)
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@cvb

yes was found in routine blood work with liver values off further testing revealed tumors in liver the biopsy and dx of lung to liver net as for vitamen b12 levels local onc and mayo onc not concerned however will do follow up tests

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Replies to "yes was found in routine blood work with liver values off further testing revealed tumors in..."
Teresa, Volunteer Mentor | @hopeful33250 | Jan 18, 2022

@cvb

I'm glad that you provided some more information about your diagnosis.

I would also like to invite you to a virtual NETs support group at Mayo, that is facilitated by a Mayo social worker, Michelle Walsh, @michellewalsh from the Jacksonville, FL campus. The meeting is held via Zoom on the first Thursday of each month beginning at 5:30 p.m. EST and usually continuing until 7 p.m. or so. Every other month there is a medical specialist who speaks on some aspect of treatment for NETs and on the in-between months, there is general group sharing. As you are relatively new to this diagnosis you will probably find it helpful and educational to learn and share with others.

You mentioned a Dex mouthwash. I'm not familiar with that. Could you discuss how it helps?

Do you have an appointment yet for the next scan at Mayo? Do you visit Mayo in Rochester, Minnesota, or another campus?

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