Thanks for sharing. This sounds incredibly hard! I’m really sorry this is happening to you. I am an ICU nurse recovering from infection in Oct 2021. I can identify with your term “crashes” and some (but not all) of the symptoms you describe particularly that “leaden” feeling (for me it is mostly my legs), the short windows for activity (mine also are about 2hrs/day) and the “boom-bust” cycles from testing my limits. I have found an activity diary quite helpful with this, and am currently trying to break my activities in shorter periods with more frequent rests to see if that helps. I truly sympathize with your difficulty adjusting to the impact on your life - it totally sucks!! I also struggle with this (and I think am still somewhat in denial). Try to be gentle with yourself and take one day at a time. And keep reaching out - hopefully we can learn from each other, because as my doctor said today, they are learning from us!

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