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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Hey Irene @irene5 -- I'm a fellow "drybie" too. Have been since a month after first treatment for NTM. (Had lots of phlegm -- yuck, LOL -- before treatment started). Even 10 days of sputum induction couldn't do it now. I have scans every 6 to 12 months and bronchoscopies every 6 to 12 months instead.
It sounds like things have been different since the Arikayce started! I will start it in 2 weeks I think.
All the best, Annie
Replies to "Hey Irene @irene5 -- I'm a fellow "drybie" too. Have been since a month after first..."
@anniepie I am also a drybie, just get the tiniest of bits that come up occasiionally. Take care Heather
@anniepie Good luck to you. To “help” the Arikayce I use my Breo prior to treatment. Irene
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Hi people, how long do you all have to wait for results from your sputum tests or bronchoscopies to see if you still have NTM in your lungs ?
I've often waited 8 or 9 weeks to get the results. It drives me crazy waiting so long !
(And it sucks too -- instead of doing the 100 year old dish-culturing tests they do in Australia, they could do Real-time PCR tests with a much shorter waiting time for results. They are not very kind to us !)