Connect
← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
Discussion
(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Hey Irene @irene5 -- I'm a fellow "drybie" too. Have been since a month after first treatment for NTM. (Had lots of phlegm -- yuck, LOL -- before treatment started). Even 10 days of sputum induction couldn't do it now. I have scans every 6 to 12 months and bronchoscopies every 6 to 12 months instead.
It sounds like things have been different since the Arikayce started! I will start it in 2 weeks I think.
All the best, Annie
Replies to "Hey Irene @irene5 -- I'm a fellow "drybie" too. Have been since a month after first..."
@anniepie I am also a drybie, just get the tiniest of bits that come up occasiionally. Take care Heather
@anniepie Good luck to you. To “help” the Arikayce I use my Breo prior to treatment. Irene
Connect
Hi people, how long do you all have to wait for results from your sputum tests or bronchoscopies to see if you still have NTM in your lungs ?
I've often waited 8 or 9 weeks to get the results. It drives me crazy waiting so long !
(And it sucks too -- instead of doing the 100 year old dish-culturing tests they do in Australia, they could do Real-time PCR tests with a much shorter waiting time for results. They are not very kind to us !)