Hello @cvb and welcome to Mayo Clinic Connect. I appreciate you sharing the story of your journey with this rare disorder. It is also good to know that you are asymptomatic, as I am as well. You mention that your Vitamin B12 levels are high. Does your doctor think that might be related to NETs?

I have had three surgeries for NETs of the upper digestive tract. I also have had no symptoms, the first NET was just found during a routine endoscopy for GERD and other digestive problems.

As you also have had no symptoms, I was wondering how your NETs were found. Was it the incidental result of a routine test for something else?