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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
Good luck @goatlady. I'm dry too, so I have to have bronchoscopies with bronchial lavages every 6 to 12 months to see if I'm still seropositive. What happened with the Arakayce? What kind of bad reaction did you have?
Annie
Replies to "Good luck @goatlady. I'm dry too, so I have to have bronchoscopies with bronchial lavages every..."
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My ears started ringing so loudly that I couldn't even hear myself think and I had terrible diarrhea that lasted for almost a month. The ringing ears started on the second of use. It was terrible, so my ID doctor took me off of it almost immediately. I have heard that some people have fantastic results with it. I was so hoping that I would be one of them. Not meant to be!