GI Disorder and Internal Shaking

You aren’t alone…even if you feel like it… there ARE those of us that understand because we fight the same battles every day. It’s so easy to allow ourselves to become discouraged. I’ve been there and done that so many times…but it’s NEVER helped!,,
I’ve decided that I’m going to continue to fight for every day in dealing with EPI. I hope you are too. There is hope!

Thank you for your kind words. Just nice to know you are not alone with problems! Take care lv Sue

Since August of this year I have been experiencing similar symptoms! I have been seen by the cardiologist and everything has come back negative. I have seen an endo and every test you could think of was ran (24 hr urine test, bloodwork, ultrasound of kidneys, CT of abdomen) and all these tests came back negative. My symptoms have gotten a little better but it is hit or miss everyday. In the beginning it was believed to be an interaction behind medications I was on however I still experience severe indigestion, heart papiltations, weakness throughout my body, internal tremors, restlessness with extreme fatigue and feeling like I am going to pass out. Recently I have been experiencing this more right after I eat for a few hours and then will go away. I am set up to see a gastro next week but I am tired of feeling this way, it has and is interfering with my daily life. I have never had these issues before and I am hoping someone is able to either relate or provide some answers/hope that I will overcome all of this.

Did anyone ever find out what was causing this? Internal shaking? I have been having it for years. Now my granddaughter is having it and I notice I can feel it through her skin, so I know it's a real thing and now probably inherited. I don't believe it's related to 'gas', since we don't suffer from this, but have been studying 'lectins' and believe it could have something to do with ingestion of foods that cause blood agglutination and then when you are supine somehow that effects your heart? Because mine inevitably causes a tachycardia about the time that I reach REM at night, probably when my body temperature changes. I have worn a watch monitor to try to figure it out and know from a Kardia monitor that it's tachycardia. I have had a transverse myelitis in 2015 from a quadrivalent flu vaccine, so it was interesting that someone mentioned that. I believe that could be a contributing factor. I believe lectins exacerbate that. And give you GI problems. Dr. Gunderson has written some good books about how to have a diet that helps this GI & cardiac problem. I made a chart that works for me and post it to my twitter. I've tried to eliminate most lectins. If anyone has figure it out, please let me know, or if you've found anything to take that helps please let me know, my doctor has run out of things to check for! We're talking about DNA for hypokalaemia and RYR1. I have had a reaction to low potassium with sulpha which stopped when I began taking Diltiazem. But the shaking and tachycardia remains and disrupts sleep.This is much more info than I intended to share, but am just trying to get to the bottom of this internal shaking heart problem. It's like a vibration. It's not in your head. There has to be a physiologic reason, because I can feel it in my granddaughter and she's not making it up.

Do not blindly believe what the doctors say. Check every box. I had similar symptoms and several docs wrote it off as being anxiety. Finally, I saw a good doctor who provided a full set of tests—beyond scans, basic bloodwork, etc. Seems that I was right… don’t be paranoid, but if you don’t feel right, make sure you’re exploring every possibility—from your lungs to your heart to every organ in your body. Wish I would have trusted my own instincts sooner and didn’t accept “anxiety” for an answer. Hoping whatever is going on with me is reversible. That said, one of the tests 100% confirmed that I’m in an emergency health situation and I’ve never been so scared in my entire life (lung function related — the last thing I expected — considering I’ve been feeling pressure in my head, internal quivers/tremors upon sleeping, and chest & stomach pains for so long, but those may have just been side symptoms of the bigger issue that was building around my lungs). Praying that I can recover and hope everyone reading this will take matters into their own hands and fight to get the medical care and consideration they deserve. Important to clarify: I haven’t been to Mayo Clinic before. I know they have a great reputation — The doctors that failed me are from other facilities.

@hopeful33250 and @kanaazpereira thank you SO much for your consideration and resources! I really appreciate it. It has confirmed for me that this is definitely originating along my gut-brain axis. I am looking into VZV as was mentioned in the article. POTS does not really fit but I am looking into it as well.

I haven't had headaches so much as a building pressure in my head that goes away when I passed built-up gas. I looked at @ calical's post about their seizures and luckily, what I am experiencing is nowhere near that severe. @ tigertoo's suggestion on Transverse Myelitis is a possibility (according to symptoms on John's Hopkins' website): I have bowel issues, my legs/arms can sometimes feel heavy/odd, and sometimes I have pain [more like soreness] in my lower back/hips when I've eaten but am constipated. I am also looking into Vagus Nerve Dysfunction as that is what fits my symptoms closest (pain in ear, occasional pain in vocal cords & hoarse voice = possibly due to acid reflux, unusual heart rate)

However, my internal shaking and increased heart rate has temporarily stopped! There could be a number of reasons why this is:
1) I had been anxious about my heart for two weeks. I went to the Emergency Room and started crying. After crying and having confirmation from the ER that I wasn't having a heart attack, I felt calm and comfortable so my shaking was potentially because of a buildup of stress and lack of sleep.
2) I started taking Miralax and Prevacid on the 14th as my doctor prescribed. Perhaps they are just now kicking in.

While I am glad my heart tremors have stopped, I am afraid that this is just another stop on the way to some disease I need to identify before it's too late. I have had a myriad of symptoms over the years, most of which I believe stemmed from my gut; constipation is the one constant. I have also recently been having a variety of brain fog (trouble visualizing reasoning for instinctive activities, trouble reviewing my thoughts) and have always had very poor blood circulation, pains in breastbone/chest, strange & intense drowsiness after eating, inability to feel hunger except by way of fatigue, and post-constipation pain in the left side of my brain/left eye.

I will still look into getting a heart monitor! And I will most likely post about this in the Brain & Nervous System group as well. If it is not a GI disorder, I'm not sure how to move forward.