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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
I have been having Ct-Scans about once a year or 6 months if necessary. I have never been able to cough up anything, dry as a bone. I tried Arikayce and had a bad reaction to it, so I am back on the Big 3. Have both Bronchiectasis and nodular MAC, will be 3 years in September.
Replies to "I have been having Ct-Scans about once a year or 6 months if necessary. I have..."
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Good luck @goatlady. I'm dry too, so I have to have bronchoscopies with bronchial lavages every 6 to 12 months to see if I'm still seropositive. What happened with the Arakayce? What kind of bad reaction did you have?
Annie