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Neuroendocrine Tumors (NETs) | Last Active: Nov 29 1:22pm | Replies (429)Comment receiving replies
Replies to "Thank you for all the information. I have nonfunctioning lung to liver Net just found out..."
Hello @cvb and welcome to Mayo Clinic Connect. I appreciate you sharing the story of your journey with this rare disorder. It is also good to know that you are asymptomatic, as I am as well. You mention that your Vitamin B12 levels are high. Does your doctor think that might be related to NETs?
I have had three surgeries for NETs of the upper digestive tract. I also have had no symptoms, the first NET was just found during a routine endoscopy for GERD and other digestive problems.
As you also have had no symptoms, I was wondering how your NETs were found. Was it the incidental result of a routine test for something else?