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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Sep 23 5:25pm | Replies (9357)Comment receiving replies
@alleycatkate Hi Kate. I was getting them every six months in the beginning. Because I am not a spitting kind of gal -( dry as a bone) I have to have a yearly CT scan. Since being on the Arikayce, however, I have lots of the P and M words! Irene
Replies to "@alleycatkate Hi Kate. I was getting them every six months in the beginning. Because I am..."
@irene5 Irene, Thanks for your input! P & M...Piss and Moan? Kate
Hey Irene @irene5 -- I'm a fellow "drybie" too. Have been since a month after first treatment for NTM. (Had lots of phlegm -- yuck, LOL -- before treatment started). Even 10 days of sputum induction couldn't do it now. I have scans every 6 to 12 months and bronchoscopies every 6 to 12 months instead.
It sounds like things have been different since the Arikayce started! I will start it in 2 weeks I think.
All the best, Annie
@irene5 I assume you have a hard time producing sputum samples. In order to get insurance coverage and/or financial assistance for Arikayce, did you need to have a bronchoscopy with a positive result six months after starting the big 3?
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Irene...P & M?? Puss & Mucus??