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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Hi Annie can I ask you a question we’re you just on Arikayce alone because I’m on that now and was wondering what happened with you? You were off for little time and it came back the MAC?
Replies to "Hi Annie can I ask you a question we’re you just on Arikayce alone because I’m..."
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Sorry Jennifer ( @jr2366 ) I think you've got me mixed up with someone else in this group.
I will be starting Aricayce soon, this month, for the first time. And I will definitely NOT be taking Aricayce alone -- I will be continuing with other Big 3 drugs too. That helps prevent resistance from developing to Aricacye !
Please ask Heather ( @heathert ) and Irene ( @irene5 ) for advice about their time using Aricayce -- they are among the experts on Aricayce here.
PS. I don't think you should be on 1 drug alone -- Aricayce is an important 'salvage' drug for us people who don't respond to the other Big 3 meds. Like I said above: taking only 1 drug could lead to increased resistance developing to Aricayce in our community. (I don't think Heather or Irene were on only Aricayce either). Please talk to your pulmonologist or infectious diseases doctor about this again.
Good luck Jennifer
Annie