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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
@irene,Thanks for that, I might need it again soon too. Are you able to tell me who is paying for yours, may they pay for me too or is it just a USA thing. We have cyctic fibrosis patients paying big money for their treatment with trifecta and the government will not pay for it although it is fantastic for them, so sad..Thanks Heather
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@heathert. Because there is no way on God’s green earth I could afford the Arikayce, ( we are rich in children only), my infectious disease doctor got me into the clinical trial ( phase 3). When I spoke with the Arikayce people ( they set everything up), they suggested I apply for assistance through The Assistance Fund . The long name is the Nontuberculous Mycobacterial Lung Disease Copay Assistance Program. Financial assistance is provided on a calendar year basis so you have to reapply, but they called me to remind me. What the program does is to provide assistance to cover all or part of the out of pocket cost of the Arikayce. I am so happy to have that assistance Heather. They also cover other supported medications.I wonder if they would cover the cystic fibrosis one. If you have any other questions don’t hesitate to ask me. Irene