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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: 1 day ago | Replies (1026)

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@tropicbev

Welcome, seasalted!
You described my daily life so well that I printed your post and took it to my GI doctor appointment! I brought up the subject of resection surgery to remove some of the extra loops and twists, and she said that surgeons will not do that unless it is an emergency situation and there is a total obstruction or strangulation of colon (volvulus). I had emergency surgery for that condition when I was 30 years old, but they did not remove any of my colon. Just "flipped it back". So I've been struggling with this for 38 years now. I keep a food diary and am trying to get myself into a "regular" routine but I am either constipated or have diarrhea from laxatives. Some days are worse than others. I had no idea there were so many others like me until I joined Mayo Clinic Connect, which I found by accident just a few months ago. It is very helpful to me when I start feeling sorry for myself. Good luck, and I look forward to your future posts.

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Replies to "Welcome, seasalted! You described my daily life so well that I printed your post and took..."

I feel your " pain" and the stress . It's difficult to manage because it's like a moving target. Different everyday.