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@anniepie

Hi Regina @cmi -- yes I wrote to them at BeyondAir also.

To get into this trial you need to meet a bunch of criteria -- but the main one is that you have 'refractory' NTM disease.....that means the drugs have not been successful for you after 2 or 3 years of taking them.

It's a multi-location trial. In some locations they are more advanced with recruitment of NTM patients than others. Brisbane, Australia where I live is one of the trial sites.

Basically, the trial aims to test whether taking the nitric oxide treatment with your standard NTM drugs can help to increase the number of people who seroconvert. So it's really an augmentation of existing NTM treatment.

I emailed the trial coordinator, and talked with the trial nurse and my doctor who is co-researching on this trial. Unfortunately -- although so far I do have refractory MAI -- I'm not eligible for other reasons. (The things that rule me out of the trial are: the Nitric Oxide might potentially affect my heart drugs, and I cannot produce quarterly sputum to test -- I need to have a bronchoscopy to test for continued NTM infection).

But other people in this group, who live in the locations where this trial is being held, might have better luck getting in to it.
Annie

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Replies to "Hi Regina @cmi -- yes I wrote to them at BeyondAir also. To get into this..."

Thank you Annie. You provided me with good information. I did not hear back from Beyond Air, but you certainly have hit the pause button for me now. I am early arriving to this scene, just diagnosed 4 months ago and on the meds for 2 of those. So, I see that I would have a long period...to qualify...and truly, I pray I don’t. I am holding onto hope that I will convert within the 18 month plan. So I will shelve the NO option.
I did read up on the NAC adjunct to therapy; have ordered the supplement and will discuss with my ID doc at February visit...I would like to take the amino acids. I am just not sure of dose...some research documents 2400 mg OD w meds. With no conclusive studies to support claims, I am tentative. On the other hand, I have always taken amino acids as supplements in my daily wellness routine (Lysine).
I do appreciate all the support and suggestions from this group. You continue to be strong and safe.
Regina