← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
Discussion(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "Annie, and group...I am posting a link...regarding NAC and biofilm...but it is lengthy and we need..."
Hi Regina @cmi -- yes I wrote to them at BeyondAir also.
To get into this trial you need to meet a bunch of criteria -- but the main one is that you have 'refractory' NTM disease.....that means the drugs have not been successful for you after 2 or 3 years of taking them.
It's a multi-location trial. In some locations they are more advanced with recruitment of NTM patients than others. Brisbane, Australia where I live is one of the trial sites.
Basically, the trial aims to test whether taking the nitric oxide treatment with your standard NTM drugs can help to increase the number of people who seroconvert. So it's really an augmentation of existing NTM treatment.
I emailed the trial coordinator, and talked with the trial nurse and my doctor who is co-researching on this trial. Unfortunately -- although so far I do have refractory MAI -- I'm not eligible for other reasons. (The things that rule me out of the trial are: the Nitric Oxide might potentially affect my heart drugs, and I cannot produce quarterly sputum to test -- I need to have a bronchoscopy to test for continued NTM infection).
But other people in this group, who live in the locations where this trial is being held, might have better luck getting in to it.
Annie