← Return to COVID vaccines and neuropathy

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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 14, 2023 | Replies (2164)

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@lk61

Thank you for this link. It was strong information. Are you aware of any on-going studies on COVID vaccine reactions? I have registered on a website that seems to be NIH based, however it does not return any studies which match my conditions. I would like very much to be involved in any research related to this, I feel it would somehow go a little ways towards making all the fear and discomfort worthwhile. I plan to bring it up with my own neurologist at my next visit, but I have learned to have very low hopes with him. Thank you for any resources, and for the wonderful job you do with this forum.

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Replies to "Thank you for this link. It was strong information. Are you aware of any on-going studies..."

Thank you for the kind words @lk61. I did register with VAERS after I had the Pfizer vaccines and the booster but I haven't participated in any clinical trials or studies. There are some studies and information listed on the NIH site here --- Understanding COVID-19 Clinical Trials: https://covid19.nih.gov/treatments-and-vaccines/clinical-trials

I have participated in 2 different influenza vaccine studies through Mayo Clinic in the past but it's been a few years and I haven't seen any data from the studies. I did get a free flu shot so that was payment enough for me 🙂 I'm currently participating in a RSV (Respiratory Syncytial Virus) study through Mayo Clinic which is a study on how RSV affects the senior population (I think). I have my own nasal swab kit and if I'm feeling in the dumpers like I have COVID or other respiratory virus, I have a number to call before I give myself a nasal swab and they walk me through whether I should do the swab and if so, they send a messenger to pick up the test kit to determine the results.

I am in the same position of not being able to have the vaccine, but because I have so many allergies. I can be (and have been) allergic to almost anything. Only one of my doctors believes me, the rest just think I'm neurotic. I did read a study last year from England that showed neurological damage to some people from the vaccine. Now, of course, I can't find the site, but I'm not great at searching. Where I live has a very high covid rate, and it's frightening., but I'm not willing to take the chance. Peace and healing to you, you are not alone.