@lyhay1973
Hello,
Epilepsy can be difficult to accept. I have had it for 55 years and at 15 or 16 when the seizures became more severe (usually daily) I had a breakdown. Believe me I know how hard acceptance can be but controlling the stress/anxiety can be detrimental in Epilepsy. Those problems may potentially cause the seizure threshold to be lowered causing more seizures. Many worry about when the next seizure will hit which is understandable shortly after being diagnosed but worry never helps and may lead to more problems.
Her defeated feeling, I believe, are normal at this point. She needs time to accept the diagnosis and sadly she may become a victim of the stigma associated with Epilepsy which makes things even worse. But Epilepsy is nothing to be embarrassed or ashamed about and I hope she and your family are able to talk openly and freely about it.
I totally agree with you about the bubble. That would do more harm than good in my opinion.
Research is showing that exercise and being physically fit may actually lessen the risk of seizures. That however is not to say her life won't be altered somewhat. One thing that should be avoided is taking a bath unless someone is with her. Last month a sports celebrity with Epilepsy died in the shower. His family believes it was a result of a seizure. It's much more rare to drown in a shower but quite a few have. Best to have a temperature control in the shower or knobs verses a handle and a drain system that can't be blocked. Many people are scalded when they had a seizure and fall against the handle.

Coping with E.
- Accept diagnosis.
- Don't be Ashamed or embarrassed.
- Take medication FAITHFULLY
- Control stress and anxiety.
- Plenty of quality sleep
- Keep a seizure diary

Her defeated feeling, I believe, are normal at this point. She needs time to accept the diagnosis and sadly she may become a victim of the stigma associated with Epilepsy which makes things even worse. But Epilepsy is nothing to be embarrassed or ashamed about and I hope she and your family are able to talk freely about it.
I totally agree with you about the bubble. That would do more harm than good in my opinion.

This tip isn't significant for all patients but a study from Stanford University showed seizure patients should use the same drug manufacturer and not switch from brand to generic and vs versa.
What type seizures does your daughter have? Did her EEG show any seizure activity?

This tip isn't significant for all patients but a study from Stanford University showed seizure patients should use the same drug manufacturer and not switch from brand to generic and vs versa. My Neurologist always prescribes extended release or brand named drugs unless patients insist on generic. My seizures stopped soon after I started taking the extended-release meds after 45 years. My seizures are very infrequent now compared to multiple seizures daily or near-daily.

What type seizures does your daughter have? Did her EEG show any seizure activity? Was her MRI clear.

She should not withdraw regardless of rejection or other potential problems that may arise.
Jake