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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Nov 21, 2024 | Replies (9354)
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@heathert

@boomerexpert, lovely to see your smiling face again, hope all is going well! Take care Heather

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Replies to "@boomerexpert, lovely to see your smiling face again, hope all is going well! Take care Heather"
boomerexpert | @boomerexpert | Jan 22, 2021

Thanks...back atcha!

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anniepie | @anniepie | Jan 28, 2021

Hi Heather @heathert. I really hope things are going okay for you and your family -- what a time we live in !

I've been approved to get the Arikayce and I'm now just waiting to get the meds and equipment from the USA. I've also ordered some Strepfen online (we don't have it in Australian pharmacies)

I have some Arikayce questions for you if that's okay: How often did you take a Strepfen lozenge -- was it every day? Several times a day? Mostly only for the first few weeks? Or all the time you were treated with Arikayce?

(Strepfen contains a relative of Ibuprofen -- unfortunately these drugs interact with my heart meds and can reduce the effect of one of the heart drugs I need, so I will have to try juggling the times I take it etc. What a bummer!)

Hugs, Annie

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