← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
Discussion(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "Annie - I think joining forces is a great idea - unfortunately, this is not something..."
I know, Sue @sueinmn, and we're in the middle of the worst part of Covid right now also. So it's maybe not such good timing just yet.
But it's something we can think more about, Then when the timing is better, maybe we could start doing this?
Hi @boomerexpert, me too -- very nice to see and hear you again, also. Your ideas are really, really good!
If anyone else on this forum has any thoughts or ideas, please contribute when you can. (Any old idea will do, LOL).
I think we need 3 things to happen:
1, More research focus on treatments for infectious diseases -- bacterial, viral and fungal -- especially chronic or recurrent infectious diseases. (Covid19 has certainly shown us the world needs that!)
2, More acknowledgment among doctors and specialists that biofilms are common in infectious diseases. And some diseases lock up much more of their bugs in biofilms, where antibiotics are less use. (As a result, antobiotics are used too often and for too long. Overuse is leading to antibiotic resistance all over the world! Then when antibiotics don't work so well, illnesses are often just 'abandoned to fate'. When drug treatments aren't really hitting the biofilms as well, infectious diseases can become chronic or recurrent).
3. More education of health policy-makers and the public about biofilms in infections, so that drug companies can't just continue to focus only on the planktonic stages of bugs in developing and testing their drugs -- they have to address the biofilm component too. For more than 80 years, they've only been doing half the job!
What do you think ?
Yes that would be a good way to get heard more readily. And the best way to do so is with a petition to the CDC...With the help of Mayo, reaching out to its vast list of folks with all three diseases...which starts with the staff person overseeing these forums.