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Toe twitching/fasciculations?!

Brain & Nervous System | Last Active: Jan 30 8:08pm | Replies (44)

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@jenniferhunter

@martinaston Thanks for asking. Yes, I had an ACDF (anterior cervical discectomy and fusion) of the C5/C6 disc. I asked to not have hardware placed on my spine, and my Mayo neurosurgeon did that for me because I agreed to stay in a neck brace for 3 months while it fused and he trusted me. It was worth it. Everything fused beautifully and I never have to worry about possible hardware complications or failures. He said he could do this because it was a single level fusion. All I had was a donor bone spacer. If I had chosen a bone graft from my own hip, It could have caused pain the rest of my life, and I didn't want something like that to influence my balance when I am elderly. Although this is a big surgery, it was not as bad as I had imagined. I had worked a lot at overcoming my fears. This surgery was life changing for me and a very good thing for me to regain normal functioning.

Another interesting fact was that, it was only at Mayo were my weird symptoms were understood to be spine related. I had pains all over my body and in my legs too, and an uneven gait when walking that all were caused by cervical spinal cord compression. I had found medical literature with a case similar to mine right before I came to Mayo and I came in asking questions about that as a possibility. I sent that literature in with my records when I requested an appointment. I was right about it, but it is something that there is no test to confirm, and the confirmation is that the surgery resolves the symptoms. My imaging demonstrated cord compression. There was no guessing about that.

It is all very interesting the way the body works. Are you a spine patient and contemplating potential surgery, or just have an interest in spine surgeries?

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Replies to "@martinaston Thanks for asking. Yes, I had an ACDF (anterior cervical discectomy and fusion) of the..."

Wow, thank you. I didn't want to send this discussion off onto a different tangent from the original poster's question, but yes -- I have a cervical spine MRI and might consider surgery. However, mine does not show cord compression. It's other stuff going on at C5-C6 instead. Thank you for the information.

Hi, Jennifer
I was wondering what symptoms you were having with your C5C6 disc compression?
I also have a herniated disc at 5&6 and have had pain for years radiating down my arms and my neck. Lately I’ve also had trouble gripping when doing daily chores and balance issues, vision blurriness and even my right ear is causing problems with sensitivity and pain, yet the neurosurgeon keeps sending me for more tests and having me jump through hoops before he will operate. I feel like I have to have limbs falling off for anyone to seem to want to do anything.. So, I’m afraid the nerve damage will be permanent the longer I wait and as I’m losing a lot of mobility as well as quality of life.
It would be helpful to have not only tips but what you suffered as well.?
Thank you so much! 😊