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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: Nov 23 5:30pm | Replies (573)
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@scozzyrox777

Hello all I am suffering horribly I have had a total of 6 back surgeries 5 lumbar lower lumbar fusion and most recently cervical neck fusion. I am now much worse after cervical fusion. I cannot sleep more than 3 to 4 hours and then awake from the pain in my shoulders neck arms hands and fingers excruciating pain… It is constant 10 24/7… I have tried opiate's and Baclofen and Lyrica…just got a Boston Scientific stimulator in my cervical region yesterday… I was hopeful but woke in same horrible pain again after 5 hours rest…had to reach for my Percocet immediately and Baclofen… Doctor seems to think I have CRPS and Carpel tunnel and ulnar nerve damage as well. Nothing is helping except the pin meds provide some relief. But he wants me off the pain meds and has tried twice unsuccessfully…. Feeling very frustrated and hopeless…Please HELP…

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Replies to "Hello all I am suffering horribly I have had a total of 6 back surgeries 5..."
John, Volunteer Mentor | @johnbishop | Jan 15, 2022

Welcome @scozzyrox777, I'm sorry to hear that the Boston Scientific stimulator has not helped with the pain. There is a discussion you might find helpful on stimulators --- Comparison of Spinal Cord Stimulators from Boston Sci., Nevro: Comparison of Spinal Cord Stimulators from Boston Sci., Nevro: https://connect.mayoclinic.org/discussion/comparison-of-spinal-cord-stimulators-from-boston-sci-nevro/

@rwinney posted a video about Central Sensitization Syndrome (CSS) in another discussion here that aslo might be helpful since you mentioned that the doctor has tried to get you off of pain meds twice and nothing seems to be working --- https://connect.mayoclinic.org/comment/663097/

Have you talked to the surgeon or tech about the Boston Scientific stimulator to see if they may be able to make some adjustments that will help with the pain?

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Rachel, Volunteer Mentor | @rwinney | Jan 18, 2022

@scozzyrox777 Hello. You have been through it, my friend. I'm so glad you reached out to Connect for support and information. Please know there is hope for you. Frustration is inevitable with all you have gone through, but it does stoke the flames of your fire. It sounds to me like you are scraping and scratching your way through any medication, treatment, surgery you can and it all has come to one big nasty head resulting in CRPS. Now may be best to learn how to calm the fire that is burning within your body. What do you think?

I too have a chronic pain syndrome called Central Sensitization and learned how to productively manage it through approaches such as physical therapy, stretching, cognitive behavioral therapy, reduction of chemicals, and emotional therapy. I learned these tools at Mayo Clinic's Pain Rehabilitation Center where I found hope again.

Have you ever considered a pain rehabilitation program?

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