@cljohnson25 Hello,
I know it’s frustrating. You are never so impatient in life for anything except your health. I got into Mayo Rochester fairly easy because of my complex heart issues- the appointment wait time was lengthy though once accepted. Now I have moved to Jacksonville and thought how great it would be to have cardiology and internal medicine docs all at the same place- I called last Sept to try an establish care- I was told at that time I was behind literally 1000 people on a wait list- so I added my name to the least and waited. Now it’s January and still no call- so I tried to get an appointment again and was told now wait list is closed, basically call somewhere else. I reminded them however, I was supposed to be on the wait list- I was finally given an appointment for down the road. It was very disappointing- especially because at my last cardiology appointment I also was found to have an adrenal mass. I think mine is probably fine and not causing issues but it is something I need to follow up on. My point is keep being persistent. Try and keep following up with the people at Mayo if that’s where you want to go. Right now because of COVID our healthcare is just reached at point of exhaustion, my husband is a hospital physician and being on the side of a patient and provider I have seen this. While you wait for Mayo though- there are so many wonderful providers out there who could start your treatments or work up’s. In fact sometimes with more tests and information it may be easier to get the attention of the Mayo doctors. Even for my heart- I have to have all kinds of scans and tests then with those results I got my appointment. Many university centers are great places to seek care. When I was going to move to Oregon last year I looked into OHSU and found they have a great institution that I would have felt very comfortable with my cardiology follow up. And finding a good endocrinologist could help with the adrenal mass-from what I have been told they are fairly common so I am seeking care for mine outside of Mayo. I know none of this was probably much help, but there is hope. Do some research and find places that focus or specialize in your needs and keep reaching out to them all. Best wishes
Jeane