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Can PMR (Polymyalgia Rheumatica) be induced by vaccine?
Polymyalgia Rheumatica (PMR) | Last Active: Oct 19, 2023 | Replies (401)Comment receiving replies
Thank you for commenting @mild835. It does not run in my family either, nor had I heard of it before. It took 5 months for my doctor to test me and 7 months to get an appointment with a rheumatologist. I, too, suffered for far too long. I did a lot of digging on the web for more information. I would never have taken the shingrix vaccine if I knew about this possible adverse reaction.
I am very disappointed in Merck for not declaring this as a possible adverse reaction. I would rather have had a case of shingles than acquire Polymyalgia Rheumatica. This has changed my entire life for the worse. I have so much discomfort and it’s difficult to sleep at night and go about my daily activities. I can not workout anymore. I used to work out 5 times per week. I’m so unhappy. 🥲
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I'm so sorry that you're going through all of this. Do you live in Canada by any chance? It's so difficult to get a good doctor, if you can get one at all and appointments with specialists can take up to a year. I was retired and went back to work last April. Working from home. Love it, but have been off since October, when I asked for my hours to be cut in half. Was getting up at 5 to take some pain killers so they would kick in before I started working at 8AM. The pain...excruciating. So as unable to move neck, arms and hands, then hips, I'm now on EI. Sleeping and getting caught up in the sheets and comforter was impossible, so I started to sleep in the nude (eye roll). But it worked.
Are you not on Prednisone? It has helped me immensely after only a week and 4 days. Prior to that...I can't even go there right now. It indeed changed my entire life. A 180. I'm fairly active (sort of) but a young 71.9. It seems like I grew into my age over night on August 15th. Then the morning after I took my first dose of Prednisone, I reached over to my night stand to check the time and did so without having to lift my right hand with my left arm and I knew there was hope and it just kept getting better every day. Then I thought to myself "Oh, I just did that." Going from being unable to wipe one's self and using a riser seat and splints on both hands to being the way I am even today is such a miracle to me. My bloodwork CRP which was taken today is normal. Last going off it was 42.4 or 44.2. I have a few more tests to be taken, but feel very positive and the neurologist is so nice and he listens. It is a very exhausting disease. Just fighting the pain is exhausting. I would say keep moving on all levels. I live alone. My daughter has been my angel, but she lives on the other side of town.
There is NOT 1 day that I haven't gotten dressed (and it took forever, often with tears), put on a little make-up. Gotten a meal. In spite of the pain it took to do so. Mum always used to say "the better you look, the better you feel" and she was right. I would look in the mirror and tell myself "I am successful", "I am courageous", "I am strong", "I am victorious". The power of positive words is real (as is the power of negative words). I think it became my mantra for all these months. This is not being braggadocious. This is me imparting hope to you. Positive vibes only. ~ Deb