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@sherwood06

Thanks for your reply and concern. I had been aware of FND prior to my diagnosis and on many levels, it did sound like the closest "explanation" for the vastness of my symptoms. So yes, during the past 6-8 months I have posted many times on FND Hope and I've read quite a bit on neurosymptoms.org. These are the 2 most reputable sites relative to FND.
I had a c6 c7 fusion to alleviate spinal cord compression (on imaging) which they thought was casuing my symptoms. In hindsight, I'm not sure it was. I've learned that it isn't rare for people to have spinal surgeries, only to find out their neuro issues aren't due to structural issues. Sad.
And regarding physiotherapy, I am / was a high level athlete (hockey) who still stays very active/strong(..as much as I can with what I've been through). I dont say this in a snarky manner, but I think it's safe to say that my own routines would trump any sort of physiotherapy I would be prescribed. My Dr's have echoed that sentiment so they have directed me more towards the psychiatry/psychology routes. As mentioned, I have my own spiritual/meditative practice which I have leaned on, but from a physical symptom standpoint, to not much avail.

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Replies to "Thanks for your reply and concern. I had been aware of FND prior to my diagnosis..."

@sherwood06 just reading a few of your comments, by any chance are your symptoms mainly on one side of your body?
I’m in Australia and had C6/7 fusion 2 years ago, since surgery pain and neurological symptoms have worsened, I suffer with a lot of the symptoms you mention mostly on the right side of my body, head to toe.
I have tried everything physio, pain management courses, ketamine infusions, nerve blocks, a spinal tap to check for ms, multiple MRI and brain scans and even trial of a dual spinal cord stimulator, nothing helps.
I’m currently stuck on pain medication, which is creating more issues due to the side effects
I have been diagnosed with right sided ipsilateral complex regional pain syndrome.
Have you looked into this?