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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
You're right @poodledoc. The Azithromycin is a known culprit for the few people on it longterm who develop higher millisecond rates of Long QT. It's an hERG blocker and tends to make people urinate out more potassium than normal.
(Does the name Poodledoc mean you are a veterinarian -- or do you just love dogs, like me?).
In Australia, the standard susceptibility testing they do is not fancy -- it usually first off just tests for susceptibility to Clarithromycin. Only if that's not susceptible then they try susceptibility to other meds. But I don't know about New Zealand where Heather is.
Annie
Replies to "You're right @poodledoc. The Azithromycin is a known culprit for the few people on it longterm..."
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@anniepie I am a retired Veterinarian of 43 years. My favorite dog breed is the Standard Poodle thus the name poodledoc. After being diagnosed with bronchiectasis and MAC in 2019 I researched medical patient forums and found this one from Mayo Clinic Connect to be far and away the best one out there for my lung condition. There are many very informed people willing to share their first hand experience with our condition. If anyone is a newbie here, there is a lot of good information in this particular thread (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS which was started in 2011 and now has over 1500 posts. Regarding susceptibility testing, in my opinion it should be mandatory for MAC or other NTM infections that are going to require long term multiple antibiotics each with known side effects. Why not be sure your bacteria are even capable of being killed by the antibiotics before using them.