← Return to Year Long Progression of Neurological Symptoms. Exhausted. Angry.

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@hopeful33250

Hello @sherwood06

I can hear your frustration in your words and I can certainly understand why you would feel frustrated as well as exhausted.

If you are comfortable answering a few questions, I would be interested in knowing:
Have you had a sleep study? How is your appetite? Have you gained or lost weight?
Do any of your family members have this type of problem? Could this be a side-effect of any new meds or supplements that you are taking?

I would like to invite Rachel, @rwinney, to this conversation. She has had a variety of symptoms, not exactly like yours, but she may be able to shed some light.

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Replies to "Hello @sherwood06 I can hear your frustration in your words and I can certainly understand why..."

Hi, thank you for your reply. Yes, I have had one in-lab sleep study, and one at home. Neither were all that conclusive. The problem is these symptoms have to be "flared-up" when I go in otherwise nothing will show. Neither has lined up yet in that manner. I filmed some sleep on my own and shared with doctors. In the study, I definitely had some "sleep movements" during both REM and non REM stages. REM Sleep disorder was discussed, but neither myself nor the specialists believe that is in play. No major thrashing, acting out. Simpler movements, arms, facial ticks, hypnic jerks etc... Last night I had one major "jerk" that rattled me as I went from wake-sleep state, which is normally when they occur. I also had an "olfactory hallucination" where I smelled rot/rubbish/decay for no reason. This would last a few seconds, go away, etc.. So strange. I don't know these "symptoms" even exist / are possible until I experience them and am forced to play Dr Google.
My appetite is fine. No weight issues. Yes @rwinney , would be open to hearing any thoughts you may have.

Thank you.