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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Hi Annie. Thank you for the well wishes as covid is ravaging some of our states. I am praying that your arikayce and nebulizer arrive soon. Thank you for posting that the Long QT is rare so that people don't shy away from treatment. Has your heart settled down yet? Hugs - Terri
Replies to "Hi Annie. Thank you for the well wishes as covid is ravaging some of our states...."
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Hi again Terri @windwalker Thanks for asking -- today I think the heart's okayish. But the long QT goes up and down and sometimes quite quickly over a few days. I stopped all meds for 4 weeks -- it was great! Now I'm back on them but on a much reduced dose. The meds still cause changes in QT and I have to watch it.
I hope your SVT is behaving itself -- do you get tachycardia with it often ?
Yes the long QT over 500 ms is very rare really for people on the NTM meds, so nobody should worry much about it.
Just looks like Heather and me have to be more careful. (She's the one with the good looks, laugh).
Like many people I was glad to see the end of 2020 and hoped Covid around the world would go away quickly in 2021 -- but not so fast, it seems. Please keep safe Terri -- and everyone else on this group.
Hugs to you too Terri