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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)
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@heathert

Hi at @anniepie thank you so much for that, I went to my specialist yesterday and he said the same as you, you smart cookie, I had the Halter on for 24 hours and he said my QT went from 460 to 493 so it is ok and I can stay on the meds, yay. Thanks for telling me about the low potassium, I will keep an eye on that, it must have been scary going over the 500 delay mark, Hope you are doing ok. Heather

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anniepie | @anniepie | Jan 15, 2021

Hi @heathert -- what meds are you on now?
I hope the long QT settles for you (and me). 493 is getting up there a bit. I hope it goes down for you soon. I had a halter for 24 hours too -- what fun.... not.
My GP (main doctor) does the ECG for me every 2 weeks while I'm back on the big 3, at a lower dose than before.
(Do you call them GPs in NZ?)
Maybe you could get your ECG done at a GP once a month to keep an eye on things?
The Cardiologist put me on a low dose of potassium slow release tablets to reduce the chances of potassium going down again -- so that's a help.
You've got a new ID picture I think -- is your hair lighter now? (You look great, dammit!). I refuse to use a photo until I look better, laugh.
Annie x

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