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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 14, 2023 | Replies (2164)

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@cyp238ress

I preface the below my stating that this is a obviously a health forum. Comments regarding any perceived association between the COVID vaccine and PN should be (and in my case are) completely independent of any political views or influence. It's solely a public health issue.

With that as the preface, I have had SFN since 1994. It was generally mild, with periodic flareups. The first Pfizer dose caused no reaction, but exactly three weeks after the second dose, my legs started burning with intense pins and needles and a marked increase in fasciculations. It has generally gone unabated without a return to baseline for the past 11 months. Feeling permanent at this stage.

I understand that views and associations noted on in this forum - and by me as well - are purely anecdotal and not scientific. That said, I do believe that the vaccine is responsible for the marked worsening of my symptoms. I understand too that COVID itself has caused some to get PN symptoms in close proximity to contracting the virus. Anecdotal as well.

I just think it important that people have all the information they need to make informed decisions, no different than any other medical decision. I am profoundly NOT anti-vax. I get the flu shot annually and my entire family, including my three teenagers and wife, are fully vaccinated (and wife is boosted). Given my apparent reaction, however, I have (perhaps not surprisingly) elected to not get the booster at this time.

Take good care,

JayB

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Replies to "I preface the below my stating that this is a obviously a health forum. Comments regarding..."

100% agreed. I had the reaction after both shots and the booster (all Moderna) and it's stil ongoing. My neuro surgeons says it can definitely be caused by the vaccine as he has other patients teling him the same things. This is why reporting to VAERS is so important: it might go from 'anecdotal' to facts. And from there, the vaccines can be finetuned.

How to report to VAERS?