I would have asked how frequently do you see complications that can delay healing? I am hearing it can be upwards of 60%. What sort of complications could be expected? Is it possible to have issues postop that would cause the loss of the neobladder? I would ask if your particular surgeon places kidney drainage stents through the body wall or not routinely? This was described at our educational pre-op visit by support staff and we were expecting it, but Tim's surgeon does not use them routinely. The answers to these questions would have had us better prepared to go through this massive surgery and postop period, but would not have changed his decision to have the surgery. I would have to say that in the available literature that I read about the neobladder surgery, there wasn't much discussion of complications, and if such issues are relatively common, then it is better to be prepared with knowledge. It would help to ease some of the worry when things happen that you did not expect.
Update 41/2 weeks postop: At our surgeon's request we scheduled a CT Cystogram locally to see if the neobladder is still leaking. Radiologist thinks it looks good. We will see how the surgeons feel about it and how they want to proceed.