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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
Hi Annie. So sorry to hear that you are having this issue with long QT. I had similar issue and even fainted once. I had my heart deliberately stopped by parametics and re-started back in 2015. Mine was diagnosed as superventricular tachycardia. I wonder what the difference is between that and long QT? Anyway, I was never on the Big 3 meds, so those were not behind my heart issue. I also want to add that in all of my reading of case studies involving mac/bronchiectasis; many patients also experience heart issues. It seems to be one of the co-morbid 'sister' ailments that come with lung ailments. I hope you can get your heart straightened out; I know how scary it can be.
Replies to "Hi Annie. So sorry to hear that you are having this issue with long QT. I..."
@windwalker Hi Teri, I have SVT now, too. Previously always had Bradycardia. Would love to hear more about your experience!
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Terri & @anniepie - It is true that heart and lung ailments tend to occur together. I think about it this way - the 2 organs are interdependent much the same way as the stomach and intestines are, therefore a problem with either creates additional stress for the other. I have lost count of the number of people in my extended family have to deal with both, including my 2 younger brothers and my Mom, so my PCP monitors me very closely.
Sue