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Has anyone experienced internal vibrations?

Brain & Nervous System | Last Active: 2 days ago | Replies (888)

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@loribmt

Thank you for giving us all an update on your condition! And also for encouraging everyone to keep the dialog going here in the Connect forum. We’re all here to help each other out!

I’m glad to see you’re finally get some relief with your symptoms and only rare occurrences now. I went through the vibrations and electrical surges with inflammation on my spinal cord a couple years ago. If conditions are right, even though my MRIs show no more damage, I still get a few ‘electrified days’. Thankfully they’re much rarer these days too!

What do you feel has brought on the recovery? Time? The calcium/mag supplements? Gabapentin?

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Replies to "Thank you for giving us all an update on your condition! And also for encouraging everyone..."

I honestly think time. That said, since I have no side effects from the relatively low dose of gabapentin, neither my doctors nor I are in a rush to pull back from that, considering I do still have a level of symptoms.

Interesting, I have had at least two doctors theorize that it was very early COVID that triggered my BFS, back in Jan 2020. That was before we knew about it so of course no testing. Not my personal theory (I never had a fever or cough, despite feeling like death in just about every other way), but also interesting that after my Moderna vaccines, I had BFS symptoms spike back up while my body was fighting to build the antibodies. I attribute the spike more so to overall immune system and body fatigue, personally.