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@rvan

Hi Lynn, I have not been diagnosed as of yet but this sounds like me and I may even be worse off. Prednisone calms me for a few weeks but then it comes back just as bad and I have great difficulty breathing. A single sputum test did show Mycobacteria. Soon I will have a scope in my lungs to determine 100%. I will remind myself of what you are doing to help yourself ,, thank you.

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Replies to "Hi Lynn, I have not been diagnosed as of yet but this sounds like me and..."

This seems to be typical. Unless you are already diagnosed with bronchiectasis, MAC is not something the docs think of until everything else fails. My own diagnosis took over 2 years of repeated illness and coughing with numerous rounds of prednisone and antibiotics. Then 2 months to control pseudomonas and 18 months of MAC antibiotics. And 4 different docs plus some ER visits.

You might like to contact your docs and ask about a nebulizer with saline and airway clearance to help move everything out of your lungs while awaiting final diagnosis.

Sue