← Return to Endometrial cancer: How fast should you have surgery?

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@naturegirl5

@cialonel Hello, I was diagnosed with endometrial adenocarcinoma, FIGO Grade 1 in 2019. I live in the rural Upper Peninsula of Michigan.
Two referrals were offered by my gynecologist - University of Michigan and Mayo Clinic. I chose Mayo Clinic. Within two days of the referral I was in Rochester, MN meeting with the GYN/ONC surgeon. By then, my pathology slides had been sent to Mayo Clinic where their pathologists provided a second opinion. The radical hysterectomy including cervix, fallopian tubes and ovaries was performed just five days after the first appointment at Mayo. Quite honestly, I was in emotional shock when I first heard the diagnosis from my local gynecologist. After the hysterectomy at Mayo Clinic pathology indicated the cancer was Stage1a, FIGO Grade 1. No spread, no more treatment needed at that time. This certainly was a relief at the time.

Did you have an endometrial biopsy with your gynecologist? Or dilation and curettage with hysterescopy which means that all of the endometrial tissue would have been sent to pathology? You were wise to contact your oncologist and see if you could have the hysterectomy sooner for two reasons.

1) Your initial diagnosis in early December with surgery scheduled two months later is a long time for anyone to wait with such a scary diagnosis. Unless there was another treatment such as radiation treatment or something else prior to the surgery that needed to occur, this seems very long to me. I don't believe anyone should have to wait two months for cancer surgery.

2) Your pathology report indicated "clear cell features" and clear cell cancer is more concerning. I have been told that it's typical for pathology to indicate something that "cannot be ruled out" based on your biopsy. When something looks suspicious the phrase "cannot be ruled out" is used. This is an alert to the medical team reading your pathology report. There may or may not be clear cell cancer and it should be evaluated further.

I realize that all that I wrote above is a lot. I'd like to say that I was very frightened with my diagnosis. Once I knew that I was in the care of my GYN/ONC surgeon and all would be moving quickly I was able to settle down. Personally, I feel better when there is a plan in place.

How are you feeling? You said that you feel trust in your oncologist. Where is your surgery scheduled?

You will receive support here on Mayo Clinic Connect. Would you please come back and let me know other ways I can support you?

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Replies to "@cialonel Hello, I was diagnosed with endometrial adenocarcinoma, FIGO Grade 1 in 2019. I live in..."

Nature Girl,
You said it well. You highlighted very well what went on with me step by step. I insisted to have my surgery much sooner so requested to squeeze me in . Thank God Ii got it in November instead of waiting another month. It will always be behind my rear view mirror but more focused now on how life before us as we know it, can changed over night. It is very precious. Thankful each day.😌😔