Hi Jennifer, we are still looking for answers about her health conditions. We know some things but so much is still unknown. We know that there is a deletion at 6Q25.2 (SYNE1). She was diagnosed with CRPS following a failed ankle surgery that led to a MRSA infection. She does not respond to oral medications normally. She was treated for the CRPS with a biophospate but had a reaction that we can find no other accounts of. She is beginning to have headaches that are completely debilitating. She has always had periodic migraines but this is something altogether different. She doesn't handle steroids well. Prescriptions pain medications don't help. It is this lack of normal response to drugs that make hospital visits terrifying. They simply ignore what she tells them doesn't work and they try it anyway because that is what they know and just don't believe what she tells them because it is so odd. She experiences Mast Cell Activation Syndrome symptoms but they have not done a blood draw at a time where they could confirm this is the case. She is in the process of putting together a medical history and more details on all of the things she has gone through but given her condition this is taking some time to do and I just don't know everything. I think she needs a "Doctor House" if you know what I mean to look deep into the issues she is having and the full picture of her background.