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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)

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@drolker

I also have Erythromelagia., so far , I have nothing that controls it. I agree with some of your recommendations such as warm not hot showers or baths, but don’t understand some of the other points you have made. How does being around electrical devices or internet cause a flare?

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Replies to "I also have Erythromelagia., so far , I have nothing that controls it. I agree with..."

A pain management dr once said, “All pain is electrical.” The nervous system is electrical, and the human body has the ability to receive radiating energy in its many forms like an antenna. In my case of EM being secondary to peripheral neuropathy, the nerves (or wiring if you will) is damaged. Putting my body in a position to receive less radiating energy (including extreme heat and cold) means there is less stress on the damaged nerves. Less unnecessary nerve signaling caused by environmental factors has resulted in less pain. This is the reason for the other things I have said help me personally.